Jealousy

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Jealousy is the gut-twisting indigestion of emotion, and I’ve felt plenty of it lately. I’m hoping it’s just a step in grieving recent losses, like treading the waves of chronic pain or seeing how my daughter is struggling more to find her place among her neurotypical peers.

I confide my jealous thoughts to my husband, and he gently warns me that I’d alienate the people involved if I revealed such feelings. I then feel a bit jealous that he can squelch his more toxic thoughts before those who might be wounded or angered by them. I’m not the kind of person who can vent before an ideal audience whenever the need arises. This is why I have a blog and he does not.

I’m not jealous of things I see and read online. My Facebook friends can post as many shots of new campers, bigger houses, and graduations as they wish. I do not begrudge them their pride. It’s enduring the sight and sound of people close to me bragging about their good fortune in matters that they know trouble me.

I could turn this around and focus on their callousness. If I had a friend who struggled with infertility, I would not brag about my unplanned pregnancy. Why in the world must I hear chapter and verse about how their children who are close to mine in age are fielding suitors and learning to drive cars? My daughter is a smart, autistic sixteen-year-old who’s gotten bullied by males and can’t tie her shoes. She resists any suggestion of her learning to drive. I love my daughter to pieces. I wouldn’t trade her in for another child, but it is hard to witness the widening distance between her and her peers.

It is hard to capture the feeling I get when I hear that the child of one of my friends has achieved something that stands at some hazy distance in the future for my own. It’s a confrontation with two things: the reality that autism is a developmental disability and a reminder that I ultimately have not surpassed the jealousies of my youth. When I was sixteen, I envied my classmates who were dating or could drive cars without failing their driving test twice. Nevermind that my daughter has told me she doesn’t want to date or drive a car yet. It burns me up that she is missing out on the same things I did, even if she claims to be indifferent about it.

When I hear my friends brag about their teenagers, I silently judge them for living through their children, but isn’t my dread about my daughter’s present and future just a photo negative of their bragging? Why should I mourn that my daughter has none of my teenage goals when my achievements of those years translated into naught in my adulthood? I was a bulimic National Merit Finalist who squandered two attempts at a college education, who half-ass stalked my unrequited crushes. It’s a good thing she’s not my clone. I’d have been tempted to send her to a convent with adjoining ECT clinic.

Last semester, my daughter had health class, and she confessed that she laughed out loud when her teacher mentioned the evils of LSD because she remembered my anecdote whose tagline was, “LSD cured my bulimia.”

Yes, that is exactly how I earned a three-day stay in a mental ward at age 19, my insistence to student health that a hit of acid had cured my bulimia. I should relish having a daughter who can enjoy those stories without the least temptation to recreate them.

She will do what’s she feels is worth her time on her own stubborn schedule. Feeling as if I’ve been wounded when I hear that a friend’s teenager has already passed points a, b, and c is an emotion I wish I could exorcise from my heart’s repertoire.

To Wish Impossible Things

I don’t have much time for writing this evening. This is the sort of reasoning that drives my dwindling number of blog posts. I don’t know where to begin, and I don’t have the time to start.

If I keep waiting to write until an afternoon yawns wide before me, eventually I’ll cease writing here. This blog will be yet another casuality of attrition.

So I will share this evening’s stream of thought, that I need daydreams about as much as my body needs oxygen. I’ve learned that waking dreams can be crucial in coping with many forms of adversity, especially chronic pain.

The key is to persuade my mind to reflect of pleasing things rather than awful ones. I’ve had persistent nerve pain in my right hip this week, which is a distressing development because my as-known nerve damage is on the left side. The pain strikes like a beacon from the black box of an airplane that’s crashed and refuses to let its wreckage be lost. The volume of its signal is a solid 7 out of 10 while I drive.

It is very tempting indeed to anticipate more of the same suffering in the days to come. However, I’ve found that a daydream of a perfect place is the best tool I have to cope with this nerve pain.

My perfect place isn’t merely some generic place like an idyllic beach. It is impossibly perfect, a forest retreat with city utilities and Wi-Fi that never fails. Here I relax in a cabin that is covered in vines and surrounded with flowers year round. Here I can stop time and have as much time to myself as I need. I might even let a pet or two join me in my repose:


I feel that this place has such a conducive vibe for learning that L’Orange and I could read through spans of the canon of literature with ease. He’d take along my copy of Washington Irving’s short stories that’s been collecting dust and good intentions on my coffee table in real life, and we’d thrill over those pastoral, sometimes spine-tingling tales.

My perfect place would be self-cleaning. It would engage all my of senses.Any food I wanted would appear at my wish. There’s something so comforting to me in imagining a perfectly satisfying meal, which would depend on what combination of salt, fat, or sugar I’m craving at the moment. Or sometimes I imagine something quite wholesome, like garden-fresh tomatoes on top of barley with a brightly flavored dressing.

What seems delightful today would be a small plate of the best fries I ever tasted, which was at a random restaurant in Solvang, California, back in ’94. I ate them at a sidewalk table, and the fries had a stellar crisp-to-fluff ratio with a hint of garlic flavor. The weather was superb for outdoor dining, as it almost never is semirural Ohio. In the perfect place, I’d eat those fries with a bit of fresh dill on top and school cafeteria ketchup for dipping. No ketchup has ever rivaled the high vinegar type of my school days.

And now my time for writing really has dwindled this evening.

Do you have a perfect place you visit in your mind?

By the way, I feel like I am remiss in writing about L’Orange without mentioning his real life sidekick Buddy:

Being Mortal

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I doubt it is possible to have access to the internet and be unaware that suicide has once again floated to the top of the news. If you were online and missed the fact that two famous and deeply gifted people took their lives this week, I’d like to know which filters you’re using in your various news feeds. You could sell it as a formula for downer-proof digital life.

In the several of the news reports about the deaths of Kate Spade and Anthony Bourdain, there were references to a CDC study which indicated a couple startling trends. First, the suicide rate has risen 30 percent or more in half of the United States. Second, the CDC found that about half of the people who committed suicide did not have a history of mental health diagnosis or treatment. This bit of information startled me.

Before hearing about this study I assumed that two things are true about suicide: that the person is indeed deceased, and that he or she had an untreated or undertreated mental illness. I even went so far as to consider that 40,000+ yearly suicides in the U.S. could indicate that we are still living in a stone age of sorts in mental health treatment, that for some people mental illness can indeed be a terminal condition.

Sadly enough, it is true that some people suffer from mental illness so resistant to available treatments that they face a real and persistent threat of death due to suicide. One of my friends committed suicide in 2016 for just such a reason. Combine a deeply disabling mental illness like bipolar or schizoaffective disorder with substance abuse (which can sometimes involve escalating dependence on prescribed, controlled substances like Xanax), and suicide is a definite risk. For individuals with a clinical picture like that, mental illness can become a terminal condition.

Now is the point where I realize that I am taking entirely too long to develop the notion that arose in my mind from reading references to the CDC study that indicated about half of people who commit suicide have no mental health treatment history. Long story short, I believe that we are living in an age where it is becoming harder to conceal serious mental illness. You don’t have to crack open very wide to intersect with a mental health diagnosis. In the case of my friend who took her life, she had an 18-year-long treatment history before her suicide. She lived in small, conservative communities for her entire life. She was a born and bred Rustbelt Republican, and she grew up knowing that mental illnesses are just as valid as physical ones.

If half of U.S. suicides involve people with no mental health diagnoses, I cannot escape the notion that a rising number of people are deciding that their lives aren’t worth living. It is possible that some people are making a rational choice to stop living for trivial reasons. Why? Because they do not value human life enough to preserve their own.

I believe that everyone does a fairly complex yet intuitive cost/benefit analysis of human life and that this analysis informs the value we place on our own lives. For example, if you believe that a blind person is worthy of a dignified, happy life, you would eventually adapt to life as a blind person if you happened to lose your vision. If in your heart of hearts, you believe that such a disability leads to a useless life, you could very well choose to end your life due to loss of vision and have no mental illness at all.

While it is vital to continue the battle of easing stigma and increasing access to mental health treatment, I also believe that is time to start a cultural discussion of the value of human life. As this value declines in our culture, it becomes more rational to think that one should stay alive only as long as one is healthy, young, wealthy, famous, or some combination of all that is prized in the here and now.

Both Kate Spade and Anthony Bourdain were well into middle age. I can’t help but think that whatever their personal reasons for suicide, their passing is symptomatic of our culture’s discomfort with aging. At 45, I am well into the long, rude awakening that aging is hard work. Have I broken some unspoken rule in advertising that I am already getting old? I’ve written several posts about my struggle with lumbar degeneration. In reality, my problem is just advanced aging of the spine. If you get old enough, there’s a good likelihood that your back will be just as bad as mine is.

I can’t be the only one who was so ill-prepared for getting older. I grew up in an era when looking young was paramount, with little regard for one’s insides– if you can be mistaken for a 30-year-old, then your insides must be that healthy, too. I am going to transgress once again in revealing that we start falling apart by degrees from the moment we are born. Ask anyone who’s had their wisdom teeth extracted after age 30, and you will hear that 30 is not so young.

In thinking of the rising suicide rate, I must remind myself that I decided long ago that life is worth living until its natural or accidental end, however hard one’s circumstances may be. Life is worth living even one is severely disabled, profoundly poor, or impossibly old.

Turn this thinking inside out. Consider a weather-beaten man wandering about downtown who looks like he has nothing but where the day may take him. No matter how he landed in such a life, his survival shows that he values his life against all odds. How much do you value yours?

I Choose to Go to the Moon

As I mentioned in today’s garden post, I had an EMG (electromyogram) test this morning. This test was paired with an NCS (nerve conduction study) to measure possible nerve damage in my L4 root nerve. Long story short, I was mildly (and literally) shocked at points along this root nerve, from my feet to my lower back. Then the testing neurologist inserted an acupuncture-sized needle on some of those same points. This needle is equipped to measure the amount of electrical activity of the muscles at rest and contraction.

The speed and degree of electrical conduction can reveal whether a nerve is healthy, pinched, or damaged. During the EMG portion that uses the needles, the sound should be silent when a muscle is at rest. During my test, every point probed along the L4 root nerve produced static both at rest and during contraction. It was like listening to an AM radio in the desert where every station eludes reception.

Onto a small tangent, my husband told me that one of the treasured memories of his youth was tuning in the Wolfman Jack show broadcast from CKLW in Windsor, Ontario. I’m not sure what sort of voodoo he used to make this happen.  This was no easy feat considering that he lived 240 miles south of that city at the time. In my left leg, it’s like the Wolfman Jack, Captain Beefheart, Casey Kasem and similar worthies have taken a permanent vacation.

Today’s electrical studies showed that my L4 root nerve has some permanent damage. The matter of when and how this happened is debatable. The neurologist told me that it is unlikely that last year’s spine surgery caused this damage because I had six good months of recovery afterward. This nerve endured some degree of compression for 10-15 years before the surgery. Now that I am having problems with an adjacent disc compressing this same nerve, the damage is more obvious.

At this time, there is no certain fix for this damage. A second surgery could relieve this pressure, but I would still have a damaged nerve. Another surgery would also present more risk than the first. This revelation makes me wonder if I unknowingly had a pointless first back surgery. Why in the world didn’t anyone order an EMG test before that surgery? How was it possible to get a spine surgery approved by insurance without such a test?

Before that surgery, I mainly had numbness along that nerve. Looking back, my pain before that surgery was much easier to endure than the flare-ups I have now. It’s like that lumbar fusion surgery awakened a beast that rages at the dying of its light whenever I stand in place for more than a few minutes at a time.

Life has ample opportunity for regret. Alas, I can’t time travel back to early 2017 and cancel that surgery. A part of me needs to believe that one is never in the wrong place at the wrong time, that we are exactly where we need to be right here, right now. It is possible that the need for a back surgery could have become urgent eventually. The longer I might have waited for that surgery, the worst the residual damage to the nerve would have been.

It still blows my mind that I lived in oblivion regarding my lumbar degeneration for more than a decade. That was a time when I could let nothing hold me back, and I was better off striving in ignorance. If I had known about this damage, I don’t think I would have even tried to have the life that I have now.

When I think of this oblivion, I recall JFK’s well-known words about the goal of reaching the moon:

We choose to go to the Moon! We choose to go to the Moon in this decade and do the other things, not because they are easy, but because they are hard; because that goal will serve to organize and measure the best of our energies and skills, because that challenge is one that we are willing to accept, one we are unwilling to postpone, and one we intend to win, and the others, too. (found here)

Creating a self-supporting life for my daughter and me has been my moon shot. While I have been married for a couple years now and have a husband who is a great help to me, it was essential to me that I learn to make it on my own. For five years, my daughter and I lived by ourselves, and we were self-supporting. This was no easy feat.

I face mental and physical adversity that could have made this impossible had I stopped long enough to consider it. Here’s what my MMPI results were when I started my personal moon shot:

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That evaluation was courtesy of the Ohio Bureau of Vocational Rehabilitation. I qualified for BVR services, but I did not pursue the plan they created for me because I would run out of welfare benefits before I finished the additional education and training needed to create a career that accommodated my disability well (and Social Security had denied my disability claim because I hadn’t given “unskilled” labor a try (Wtf?)).

So I signed up for an office temp service and prayed that I’d land in a position that could keep a roof over my and my daughter’s head. Thank God it happened! I blindly began the job I have now, thinking it was a steady data entry desk job. When I arrived, I discovered that I’d be walking through a half-million square foot facility to collect much of the data I entered.

No job is perfect and constantly loved (in that way, I suppose jobs are like people), but my job is fairly ideal for me. I never tire of the mystery of finding a pallet that seems to have sprouted legs and left the building. Or why in the world do we have cases that expire on May 36th?

If I had known how damaged my back was, it is possible that I wouldn’t have tried such things. It is true that I continue adjusting to my nerve pain, but at least I know that I am living a life I have proven is not impossible for me.

Below shows how many steps I walked last week:

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Perhaps I am grating cheese to say the following, but I will endure this road, even though I have moments that are harder than I could have imagined they’d be. I still choose to go the moon. I’m loving this metaphor a bit too much, but there are plenty of moon shots ahead of me, even if I have to sit in a chair part of the time to make it there.

Nothing Ever Changes Unless There’s Some Pain

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Spring is well into its eruption of green and blooms. Once again, it’s been entirely too long since I last posted. I actually took these photos a fortnight ago, but I haven’t gathered the will or candor to post them until now. The previous sentence begs the question of why should honesty enter the equation of creating a blog post with nature photos? This oddity arises because this blog is also an open diary of sorts, and I feel that failing to disclose parts of my ongoing problems would be a lie of omission.

I continue to struggle with chronic pain, and I suspect that I have partly alienated key people in my life with my complaints about it. I can take enough of their perspective to understand why some people just look at me with stone-still faces as I talk about my nerve pain or migraines. They can’t solve this problem for me. Nerve damage is not something that can be fixed like a flat tire.

There’s also something to be said about the notion that thinking about pain is not helpful. I don’t think it’s possible to talk about pain without thinking about it. Reflecting on pain can intensify the sensation of it. Perhaps my conversations about pain tend to become monologues because people might think being supportive of my talking about pain will lead to me thinking more about it and hurting more. There’s an innocence beneath such a perspective. You are lucky if you’ve never felt pain so omnipresent that it could not be ignored. Since I think of lyrics entirely too often, this sort of aforementioned innocence reminds of some lines from “These Days” by the Foo Fighters: “Easy for you to say . . . your pride has never been stolen.”

Speaking of lyrics, the borrowed the title of this post hails from “Goodnight Song” by Tears for Fears. There are bits of treasure to be gleaned from pop culture.

Another gem I remembered this week hails from “I Wish You Well” by Tom Cochrane (who, btw, also wrote “Life is a Highway”): “She wants her space to feel love and be angry.” I’m still angry that pain erupts in me every single day, like a toddler who tantrums again and again for toys that might have been bought if not for the fit thrown. There are few certainties in life aside from birth, death, and change. I’m mad because I don’t want my life to change.

I loved the character and substance of my days in the decade before this mess happened. I loved that I had become a morning person, that I had conquered my fatness (a problem which has returned btw, but not entirely). I loved binge-watching British mystery shows while riding an exercise bike or elliptical machine for the entirety of a series (I’d watch the show for 30 to 45 minutes at a time). I loved my small feats of strength, such as carrying the better part of a trunkload of groceries in one trip.

I’m beginning to consider that the sort of life I was leading was both a denial and intuitive treatment of spinal issues that had been brewing for years before their diagnosis. Weight loss is a good conservative treatment for spinal degeneration. Losing 130 pounds did make me feel better, but all the while I ignored important signs. It is not normal to awaken five nights a week due to leg cramps. It is not ordinary at all for weight loss to restore sensation to a knee that was apt to go numb when doing any significant standing or walking. This era of my life now seems to be an extended remix of the sort of denial that can lead a woman to fail to realize she is pregnant until she is in labor. Wasn’t there a show about this phenomenon called I Didn’t Know I Was Pregnant? I remember seeing an episode of this series wherein one of the women said she was mystified by pains that were “growing stronger and longer and closer together,” until her baby crowned.

I recall laughing heartily over that woman’s surprise childbirth story. I thought, holy shit, how can you be of childbearing age and not equate pain that gets stronger, longer, and closer together with labor? I now know that life is full of such willful ignorance. We bury all sorts of deception and pain until we’re ready to deal with it. There are times when we’d rather not add up signs of betrayal or know what that pain means. We don’t want to stop just yet and open the door to that which must be reckoned with eventually.

I’m lost in charting a course in how I must change to cope with my chronic pain. Should I pursue a cure when some of my previous attempts seemed to be worse than the disease? I belong to a Facebook group for people who’ve had spinal fusion surgery. I’ve noticed that many members have written that spinal fusion surgery was the most painful experience of their lives. In all honesty, I didn’t think it was exceptionally painful compared to other surgeries I’ve had. Actually, there have been times every day this week that I have felt worse than I did in the days after that surgery.

I suppose it doesn’t help that my affect is rather flat through all this. My Midwestern stoicism is very deeply ingrained in me; I seldom look stricken when I’m in pain. I suppose that it is hard to believe me when I mention that today I felt worse than when I was in labor with my daughter, even if that is a true statement (and I had back labor for 44 hours, half of which I endured with no pain medicine).

Here are the diagnoses on my chart at my family’s doctor’s office:

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There are several chronically painful conditions on that list.

My chart at the local orthopedic center has a bit more detail:

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I don’t know how I could keep this mess to myself, to spare people the details and reality of such pain, without being a fundamentally dishonest person. I am the sort of person who has almost no mental real estate for keeping secrets, and all of that space is reserved for secrets that belong to other people.

Lately, I’ve heard that I must be blowing this struggle out of proportion, for I’ve been through worse in the past. For example, people will mention that it must have been harder to leave everything behind but a couple suitcases when my daughter and I relocated 2,000 miles away during her infancy. I assure you, dear reader, that my past struggles were very easy indeed compared to what I face now. Nothing is easier than quitting, no matter what the consequences of doing so. Through quitting, you take the power of choosing the outcome, even if the result is awful. Quitting is not an option now. I must bend without breaking to keep everything in place, no matter how bad I’m feeling.

I will close this post with images of this season’s enfolding growth, and I hope that my mind, body, and spirit begin to reflect this renewal.

In Like a Lion and Out Like a Lamb

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I’ve neglected this blog for half of February and nearly all of March. I saw no point in broadcasting regular updates in my ongoing tale of woe. Of course, there have been happy times, such as seeing how our elder guinea pig has taught the younger one how to demand more hay. By the way, I’ve gathered that the secret to getting more feedings is to act as if one has never been fed since birth, that one’s girth has been attained solely through the act of respiration.

My daughter’s continuing troubles and my ongoing nerve pain have cast a pall over these bright moments. Meteorological winter has lingered far too long as well. We woke up Wednesday morning with a snowfall three inches deep covering the roads. Usually, I dread the prospect of driving during a winter storm, but I felt fearless and relieved at driving through that snow. School had been cancelled for the day, so the day was free of yet another attempt to evade attendance. Spared that struggle, I felt there was nothing I couldn’t face that day.

The next day I received the dreaded truancy letter informing me that my daughter has missed too much school. Nevermind that she has no unexcused absences. This is the last thing we need. I don’t want to relate this mess to the truancy officer. However, I will do so if necessary, just like I already did when I wrote a letter to her school for their records to summarize the crisis. I wrote that letter at the suggestion of her therapist. I think the exercise was therapeutic solely for me.

Last week I had a meeting at the school and learned some of the things Eileen has been doing. She is not inclined at all to tell me much about school, so of course, I was surprised at some of the things I heard. It sounds like she is torn between checking out in the style of Melville’s Bartleby (“I’d prefer not to.”) and protesting the curriculum in general. For instance, when English class starts and her classmates have their notebooks and The Plays of Sophocles ready on their desks, Eileen pulls out a book of her choosing and reads for pleasure for the rest of class. Two such books she read during English class were Susan Powter’s Stop the Insanity and Erma Bombeck’s The Cope Book. I didn’t know whether to hang my head in shame or applaud her campy reading choices. My inclination toward the great works of literature is also lacking.

I so wish that she would reveal her thoughts, hopes, and fears. It’s not like I’m a stranger to her struggle; I am only ignorant of the particulars. The difference is she is several years younger than I was when I had my “breakdown”. My troubles didn’t truly sink their tentacles into me until I went away to college. In a way, she has more to lose due to her age.

I feel like I’d have more luck cutting a diamond with my bare hands than getting her to tell me what is really going on in her mind. Whether or not she chooses to take me into her confidence, I need to find a way to let her know that madness is no refuge; take the help that is offered you to evade it. Madness is not a vacation full of cozy reading and just the right amount of sweet and salty to satisfy your hunger. It is a full force gale that can only be calmed through doing the very things you don’t want to do: listen to those who love you, follow your doctor’s advice, show up at the right time, do what needs to be done first and then bask in the glow of pleasure reading and the like later.

As for my issues, I’m still having problems with nerve pain. The partial relief I had from the L3/L4 epidural injection wore off six weeks after I received it. I also have nerve pain that doesn’t correspond to degeneration in my spine. It looks like it’s possible that I’ve developed fibromyalgia. I have a referral to a neurologist to eliminate other possible diagnoses.

Somehow this pain is easier to deal with than my daughter’s ongoing anxiety and attendance problems. I’d rather live with that than go back to high school.

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My vacation from blogging

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Our first snow of the season is falling outside, an inch-deep Alberta Clipper. I am long past the cozy enchantment of anticipating snow drifts and the like. I’d rather watch it through the safe distance of film or video than experience it firsthand.

I’ve refrained from writing posts for the past couple weeks because I thought that doing so would be akin to pouring salt on a wound. Now that the worst of the nerve pain that plagued me through late summer to mid-November seems to be behind me, I have been quite angry over what happened. I am mad that I waited so long for relief (which, by the way, came randomly with the pulling of a heavy drawer while bent over at an awkward angle).

I am not exaggerating when I say that this interlude of nerve pain was the worst thing that has ever happened to me. Maybe there is something in the nature of pain that inclines a person to believe that the latest acute episode is the worst one, sort of a photo negative of one’s love life, how often we hear that a person’s current lover is the best one ever. With that aside, I will tell that I really did feel worse than I ever had.

I am no stranger to pain. I had a radical mastoidectomy, wherein a damaged part of the skull that borders the ear is removed. I was in labor for 44 hours when I had my daughter, and I had no pain medication for 24 out of those 44 hours (and this was back labor). I would add this year’s spinal fusion surgery to this list, but the pain of that procedure and its recovery were nowhere near as bad the preceding two events in this paragraph.

I know that there are millions, if not billions, of people in this world who’ve lived through pain far worse than I have. I can only attest to my own pain, and I am mad when I think of all the effort I devoted to finding a resolution to my recent pain. I don’t think I was taken seriously because I could still walk on my own and keep a straight face while doing so.

It must be hard for orthopedic doctors to understand that the pain of a patient who can work and communicate as normal can be important. In any given day or week, they see patients who’ve been broken through traumatic accidents, people who arrive for their appointments in a wheelchair or on a stretcher. So when someone like me comes knocking, a patient who seems to walk with apparent ease and can report their symptoms in a near-clinical tone, they must be tempted to assume that such a patient is just worried but well. I was not.

After three months of asking for an explanation for why I suddenly felt so bad six months past my surgery, I learned a few things through an MRI and physical examinations. I am healing well from my L4/L5 fusion surgery. This does not surprise me because the pattern of my nerve pain was markedly different than what I experienced in the months leading up my surgery. Back then, I had numbness in my left knee and part of my foot, with flares of sciatic pain that struck at random. This time around, I had awful nerve pain in a band from my outer left hip to the inside of my left knee, only when I stood in place for more than a few minutes or walked more than a hundred yards or so.

It turns out that my L2/L3 and L3/L4 discs have degenerated more in the past year, but neither are in bad enough shape to qualify for more than conservative treatment measures. I also have bursitis in my hip and strain in a tendon that leads from my hip to my knee (ITBS, or iliotibial band syndrome). I’ve been doing physical therapy exercises for the bursitis and ITBS, but the aches and pains of those issues aren’t completely gone.

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I do not yet have clarity on what I can do to prevent further flare-ups of nerve pain. No one has offered me a prognosis or definitive reason for why my orthopedic problems continue. Last year, I heard that my lumbar degeneration is hereditary. This makes sense given that I have several close relatives with similar problems. However, there isn’t enough similarity between our symptoms and course of disease to model a course of action based on what has worked for the others.

I wish I knew if I there was something I am unwittingly doing that could be making things worse, that some qualified person could take me in hand and tell me that I should change my life in such-and-such ways because of my spinal stenosis. It seems I must draw that map myself.

I don’t think I have accurately conveyed how active I must be to lead the life that I do. Both my job and my life at home require all sorts of walking. Below is a chart of all the walking I’ve done since my surgery in March (from my Fitbit account, btw):

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I’ve discovered through long experience that the only sure thing that keeps my depression at bay is walking. I thank God that the chief prescription for my surgical recovery was walking. What would I do if my spinal stenosis progressed to the point when I couldn’t walk much at all? I’d practically need to remake myself.

I’ve watched far too many episodes of Agatha Christie’s Poirot lately. There was something Poirot said in the episode called “Appointment with Death” that is one of the most inspirational things I’ve ever heard:

“There is nothing in the world so damaged that it cannot be repaired by the hand of almighty God.”